Still in limbo, and official complaint
I'm still waiting for more news about possible change from cyclophosphamide to rituximab, and for the biopsy! I have now received my next clinic appointment for 5th April. However, my nasal hole is getting sore and headaches have returned, so I don't feel like I'm getting very far again.
Maybe they're waiting for blood test being done on Thursday?
I don't believe this can be a flare, because I don't think I've been fully in remission yet!
Also, I've had a further reply from the West Suffolk hospital regarding my complaint, but I'm still not happy with it, and feel I should resort to the ombudsman, and try for an independent review.
(Has anyone else tried this?) My husband doesn't think I'm going to get the explanation I want!